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The 2009 conference is hosted by The Science Shop, Queen's University Belfast
Roundtable D: Ethics and Community Based Research
Saturday 29th August 2009
11.00-12.00
Venue: to be confirmed
Chair: Professor Jean-Pierre de Greve, Vrije Universiteit Brussel
Presenter:
Joanna Ochocka and Brenda Roche
"Ethics and Community Based Research" Centre for Community Based Research, Ontario, Canada and Wellesley Institute, Toronto, Canada
Format:
The purpose of this roundtable is to share a case study of the community process that started a year ago (with successes and dilemmas to date), to develop a strategy for setting up a community specific research ethics process that ensures that ethical research standards are meaningfully and consistently practiced in Waterloo Region and the Greater Toronto Canada. This case study will be used as a spring board for the participants’ discussion.
There is a growing interest in community based research (CBR) both in and beyond academia. With this has emerged the recognition that CBR may pose unique ethical challenges in research practice and in the review processes that typically accompany health and social research in Canada. While academics are required by their institutions and funders to submit their research proposals to a rigorous ethics review process, those outside of academia have no ethics review process in place. As community based research is increasingly being conducted outside of academia by community members, independent researchers, private consulting firms, government departments and non governmental organizations, this poses unique procedural challenges. The Centre for Community Based Research together with the Wellesley Institute are responding to the urgent need for community based ethics review processes by conducting a needs assessment and feasibility study in two regions in Canada.
Questions:
- What are the ethical dilemmas, tensions and challenges experienced in pursuing community based research.
- What promising practices, strategies and supports to address ethics in community based research exist in various communities and countries
- What are the principles of community, participatory process of setting up community based research ethics boards